# European action in the field of rare diseases

European Parliament procedure 2008/0218(COD) (COD, 6th term, committee ITRE). Stage: None. 10 committee amendments tabled by 2 Members between 2009-02-18 and 2009-02-18.

## What the amendments focus on

Legislative dossier on European action in the field of rare diseases. The amendments call for comprehensive strategies and national plans, a common EU definition based on a prevalence threshold, disease information networks, registries and databases, cross-border healthcare and patient mobility to specialised European centres, sharing assessments of the clinical added value of orphan drugs, and a European website providing information on research, medicines and specialist centres.

## Most active Members on this file

| Member | Country | Group | Amendments | Markdown |
|---|---|---|---|---|
| Silvia-Adriana ȚICĂU | Romania | S&D | 7 | https://amendeu.com/md/meps/36281.md |
| Fiona HALL | United Kingdom | ALDE | 3 | https://amendeu.com/md/meps/28477.md |

## Official source documents

- PE420.123: http://www.europarl.europa.eu/sides/getDoc.do?pubRef=-//EP//NONSGML+COMPARL+PE-420.123+01+DOC+PDF+V0//EN&language=EN

Full amendment texts, votes and exports: https://amendeu.com/dossiers/2008-0218-COD · machine-readable: https://amendeu.com/data/dossiers/2008-0218-COD.json

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Source: AmendEU (amendeu.com), built from Parltrack (ODbL), European Parliament Open Data ((c) European Union) and official Parliament documents. Aggregates CC BY 4.0.
Data refreshed: 2026-07-27. Human-readable version: https://amendeu.com/dossiers/2008-0218-COD
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